Women's difficulties with endometriosis regarding the diagnosis and the impact on their lives

Authors

  • Gabriela Giaretta
  • Ana Augusta Krassowski Franco
  • Maria Fernanda Mendonça Fontes
  • Júlia Menegotto
  • Cristina Marschall
  • Marian Felisberto Bitencourt
  • Hauana Heilig Martins
  • Luciano Henrique Pinto

DOI:

https://doi.org/10.36489/saudecoletiva.2021v11i69p8036-8045

Keywords:

Women's Health Services, Women's Health, Endometriosis, Delayed Diagnosis

Abstract

Diagnóstico Tardio; Endometriose; Saúde da Mulher; Serviços de Saúde da Mulher. Purpose: To know the reality of women who had late diagnosis of endometriosis and the impact of this reality on their daily routine and self-esteem. Methods: an observational study of documentary analysis and interviews, in which data were obtained from the analysis of the answers given through a virtualized questionnaire. The data and information collected corresponded to [a] Patient characteristics [b] Diagnosis-related questions, and [e] Main difficulties to reach the diagnosis. Results: A large portion of women interviewed (83.46%) heard that their behavior in the face of menstrual cramps was exaggerated. A total of 78% of women reported that their doctors expressed that their behavior towards pain was exaggerated. ln addition, "scheduling a specialist doctor's appointment in the private sector" was the least reason mentioned as a difficulty that compromised the treatment (60.70%). Conclusions: Searching for alternatives in health policies, for this clinicai condition, becomes essential and urgent.

Author Biographies

Gabriela Giaretta

Graduandos em Medicina, Universidade da Região de Joinville, UNIVILLE. ORCID: 0000-0003-1865-9404

Ana Augusta Krassowski Franco

Graduandos em Medicina, Universidade da Região de Joinville, UNIVILLE. ORCID: 0000-0002-2041-1291

Maria Fernanda Mendonça Fontes

Graduandos em Medicina, Universidade da Região de Joinville, UNIVILLE. ORCID: 0000-0003-0149-7648

Júlia Menegotto

Graduandos em Medicina, Universidade da Região de Joinville, UNIVILLE. ORCID: 0000-0002-0978-0555

Cristina Marschall

Graduandos em Medicina, Universidade da Região de Joinville, UNIVILLE. ORCID: 0000-0001-5254-4809

Marian Felisberto Bitencourt

Graduandos em Medicina, Universidade da Região de Joinville, UNIVILLE. ORCID: 0000-0003-1467-3356

Hauana Heilig Martins

Graduandos em Medicina, Universidade da Região de Joinville, UNIVILLE. ORCID: 0000-0003-1003-037X

Luciano Henrique Pinto

Professor Adjunto, Departamentos de Medicina, Enfermagem e Farmácia, Universidade da Região de Joinville, UNIVILLE, Coordenador do Projeto Integrado ECOSAM. ORCID: 0000-0003-0250-7502

References

Kiesel L, Sourouni M. Diagnosis of endometriosis in the 21st century. Climacteric 2019; 22: 296-302.

Pereira ACC, Pereira MMA, Vale PM, et ai. Comparison between combined hormonal contraceptives and progestogens in the effectiveness of the treatment of endometriosis: a literature review. BJHR 2021; 4: 4081-4093.Edwards L. ln the kingdom of the sick: a social history of chronic illness in America. 1 st U.S. ed. New York: Walker & Co, 2013.

Nezhat C, Vang N, Tanaka PP, et ai. Optimal Management of Endometriosis and Pain. Obstetrics & Gynecology 2019; 134:

-839.

Edwards L. ln the kingdom of the sick: a social history of chronic illness in America. 1 st U.S. ed. New York: Walker & Co, 2013.

Bianca B, Christofolini DM, Brandes A, et ai. Análise do polimorfismo no códon 72 do gene TP53 em mulheres inférteis com

e sem endometriose. Rev Bras Ginecol Obstet 2011; 33: 37-42.

Kiesel L, Janni W. Endometriose. Gynakologe 2020; 53: 644-644.

Nezhat C, Vang N, Tanaka PP, et ai. Optimal Management of

Endometriosis and Pain. Obstetrics & Gynecology 2019; 134:

-839.

Surrey E, Soliman AM, Trenz H, et ai. lmpact of Endometriosis Diagnostic Delays on Healthcare Resource Utilization and Costs.

Adv Ther 2020; 37: 1087-1099.

Brilhante AVM, Oliveira LAF, Lourinho LA, et ai. Narrativas autobiográficas de mulheres com endometriose: que fenômenos permeiam os atrasos no diagnóstico? Physis 2019; 29: e290307.

Hoffmann DE, Tarzian AJ. The Girl Who Cried Pain: A Bias against Women in the Treatment of Pain. J Law Med Ethics 2001;

: 13-27.

Elicker Rosin B, Reinert Avilla Machado F, Martina da Rosa S, et ai. Influência dos fatores "sobrepeso" e "sedentarismo" no

aparecimento precoce de diabetes em mulheres com SOP. SaudColetiv (Barueri) 2021; 11: 4676-4685.

Published

2020-10-01

How to Cite

Giaretta , G. ., Franco, A. A. K. ., Fontes, M. F. M. ., Menegotto , J. ., Marschall, C. ., Bitencourt, M. F., Martins, H. H. ., & Pinto, L. H. . (2020). Women’s difficulties with endometriosis regarding the diagnosis and the impact on their lives . Saúde Coletiva (Barueri), 11(69), 8036–8045. https://doi.org/10.36489/saudecoletiva.2021v11i69p8036-8045

Issue

Section

Artigos Cientí­ficos