Relationship between functional dependence of elderly people with dementia and overload of informal caregivers

Authors

DOI:

https://doi.org/10.36489/saudecoletiva.2022v12i82p11916-11929

Keywords:

Aged, Dementia, Caregivers

Abstract

Objective: To identify factors associated with burden of caregivers of elderly people with dementia. Method: A descriptive study of quantitative nature, composed of 50 caregivers and 50 elderly assisted at the Western Region Polyclinic, in the period from August to December 2019. The scales used to assess the burden were: sociodemographic questionnaire, QASCI and Zarit Scale. For the assessment of the dependence of the elderly: Pfeffer and Katz Scale. The statistical analysis was performed using the Statistical Package for the Social Sciences (SPSS) software version 20.0 and descriptive analysis was made with Kruskal-Wallis and Chi-square tests. Result: From the 50 caregivers interviewed, 26% presented light burden, 42% moderate and 32% severe. As for the elderly, 8% were independent, 32% were partially dependent and 60% were totally dependent. Conclusion: It was observed that the caregivers' burden is significantly related to the time dedicated to the care and to the level of dependence of the elderly.

Author Biographies

Raliele Fonseca da Silva

Nurse linked to Hospital Santa Lucia. Postgraduate student in Geriatrics and Gerontology at the University of Passo Fundo (UFP). Brasilia DF. Brazil.

Aurenívia Santana Carvalho

Nurse. Postgraduate student in Public Health with emphasis on family health at the Descomplica Institution.

Ana Heloisa de Souza Marques

Nurse. Resident of the Multiprofessional Program in Mental Health, Alcohol and other Drugs at the Fiocruz School of Government – EGF/Fiocruz.

Renilde Barros Tavares

Nurse linked to the State Health Department of the Federal District. Specialist in Neonatology by the Brazilian Association of Obstetricians and Obstetric Nurses (ABENFO). Maternal and Child Hospital of Brasília

Beatriz da Costa Barreto

Nurse. Resident of the Multiprofessional Residency Program in Resident of the Multiprofessional Program in Adult and Elderly Health by the Escola Superior de Ciências da Saúde (ESCS).

Brenda Miliane Silva de Jesus

Nurse. Former scholarship holder of the Scientific Initiation Project by the Escola Superior de Ciências da Saúde (ESCS) in the years 2019-2020 and 2020-2021.

Moisés Wesley

Nurse linked to the State Health Department of the Federal District. Master in Medical Sciences from the University of Brasília (UnB). Professor of the Nursing course at the School of Health Sciences (ESCS)

Regina de Souza Barros

Nurse linked to the State Health Department of the Federal District. Master's student in Rehabilitation Sciences at the University of Brasília (UnB). Postgraduate student in Gerontology at the School of Health Sciences (ESCS). Professor of the Nursing course at the School of Health Sciences (ESCS), Samambaia Sul

References

Instituto Brasileiro de Geografia e Estatística [http://www.censo2010.ibge.gov.br /sinopse/index.php?dados =12&uf=00# topo_piramide]. Censo demográfico de 2010 [acesso em 12 jan. 2019]. Disponível em: http:www.ibge.gov.br

Silva ILC, Lima GS, Storti LB, Aniceto P, Formighieri PF, Marques S. Sintomas neuropsiquiátricos de idosos com demência: repercussões para o cuidador familiar. Texto Contexto Enferm. 2018 8;27(3).

Fukushima RLM, do Carmo EG, do Valle Pedroso R, Micali PN, Donadelli PS, Fuzaro Junior G, et al. Effects of cognitive stimulation on neuropsychiatric symptoms in elderly with Alzheimer’s disease: A systematic review. Dement e Neuropsychol. 2016;10(3):178–84.

Maia JC, Coutinho JVF, Sousa CR De, Barbosa RG, Mota FR do N, et al. Tecnologias assistivas para idosos com demência: revisão sistemática. ACTA Paul Enferm. 2019;31(6):651–8.

Diniz MAA, Melo BR de S, Neri KH, Casemiro FG, Figueiredo LC, Gaioli CCL de O, et al. Comparative study between formal and informal caregivers of older adults. Cienc e Saude Coletiva. 2018;23(11):3789–98.

Lima-costa MF, Peixoto SV, Malta DC, Szwarcwald CL, Mambrini JVM. Cuidado informal e remunerado aos idosos no Brasil (Pesquisa Nacional de Saúde, 2013). Rev Saude Publica. 2017;51(1):1s-9s.

Marins AM da F, Hansel CG, Silva J da. Behavioral changes of elderly with Alzheimer’s Disease and the burden of care for the caregiver. Esc Anna Nery - Rev Enferm. 2016;20(2):352–6.

Dos Santos Messias LA, D’Almeida Gazetta FA, Barbosa PMK, Calamita Z. Practical knowledge and life overload of caregivers of elderly with dementia. Sci Med (Porto Alegre). 2018;28(3):4–11.

Leite BS, Camacho ACLF, Joaquim FL, Gurgel JL, Lima TR, Queiroz RS de. Vulnerability of caregivers of the elderly with dementia: a cross-sectional descriptive study. Rev Bras Enferm. 2017;70(4):682–8.

Brasil. Secretaria de Atenção à Saúde. Departamento de Atenção Básica. Caderno de atenção domiciliar: Ministério da Saúde. 2013; p 191.

Souza LR de, Hanus JS, Dela Libera LB, Silva VM, Mangilli EM, Simões PW, et al. Sobrecarga no cuidado, estresse e impacto na qualidade de vida de cuidadores domiciliares assistidos na atenção básica. Cad Saúde Coletiva. 2015;23(2):140–9.

Monteiro EA, Mazin SC, Dantas RAS. Questionário de Avaliação da Sobrecarga do Cuidador Informal: validação para o Brasil. Rev Bras Enferm. 2015;68(3):421–8.

Palmieri JC. Avaliação Geriátrica Ampla de Idosos Acompanhados em Centro Dia de Botucatu. Botucatu. Dissertação [Mestrado em Pesquisa Clínica] – Universidade Estadual Paulista “Júlio de Mesquita Filho”. 2019.

Belintani DC, Bueno DRS, Fattori A, Guariento ME. Funcionalidade de idosos não portadores de demência atendidos em serviço de referência. Rev Bras Neurol e Psiquiatr. 2017;21(1):6–16.

Lopes MCBT, Lage JSS, Vancini-Campanharo CR, Okuno MFP, Batista REA. Factors associated with functional impairment of elderly patients in the emergency departments. Einstein (São Paulo). 2015;13(2):209–14.

dos Anjos KF, de Oliveira Boery RNS, Pereira R, Pedreira LC, Vilela ABA, Santos VC, et al. Association between social support and quality of life of relative caregivers of elderly dependents. Cienc e Saude Coletiva. 2015;20(5):1321–30.

Cesário LMS, Charigliane IPFS. A percepção de familiares cuidadores frente às mudanças ocorridas após um diagnóstico de demência. Rev Bras Geriatr e Gerontol. 2018;21(6):743–54.

Queiroz RS, Camacho ACLF, Gurgel JL, Assis CRC, Santos LM, Santos MLSC. Perfil sociodemográfico e qualidade de vida de cuidadores de idosos com demência. Rev Bras Geriatr e Gerontol. 2018;21(2):205–14.

Bagne BM, Gasparino RC. Qualidade de vida do cuidador do portador de doença de alzheimer. Rev Enferm. 2014;22(2):258–63.

Jesus ITM de, Orlandi AA dos S, Zazzetta MS. Sobrecarga, perfil e cuidado: cuidadores de idosos em vulnerabilidade social. Rev Bras Geriatr e Gerontol. 2018;21(2):194–204.

Mielke FB, Kantorski LP, Jardim VMDR, Olschowsky A, Machado MS. O cuidado em saúde mental no CAPS no entendimento dos profissionais. Cienc e Saude Coletiva. 2009;14(1):159–64.

Published

2022-12-02

How to Cite

Fonseca da Silva, R., Santana Carvalho, A., de Souza Marques, A. H., Barros Tavares, R., da Costa Barreto, B., Silva de Jesus, B. M., Wesley, M., & de Souza Barros, R. (2022). Relationship between functional dependence of elderly people with dementia and overload of informal caregivers. Saúde Coletiva (Barueri), 12(82), 11916–11929. https://doi.org/10.36489/saudecoletiva.2022v12i82p11916-11929

Issue

Section

Artigos Cientí­ficos